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Tuesday, March 8, 2016

It's International Women's Day! Birth, Breastfeeding, Babywearing!

Here's to strong women! May we know them. May we be them. May we raise them. ~Unknown

International Women's Day (IWD) is celebrated in many countries around the world. It is a day when women are recognized for their achievements without regard to divisions, whether national, ethnic, linguistic, cultural, economic or political. International Women's Day first emerged from the activities of labor movements at the turn of the twentieth century in North America and across Europe.
Since those early years, International Women's Day has assumed a new global dimension for women in developed and developing countries alike. The growing international women's movement, which has been strengthened by four global United Nations women's conferences, has helped make the commemoration a rallying point to build support for women's rights and participation in the political and economic arenas.


Celebrate With Wonder Woman and Lois Lane 

Of course, at Blossom Health and Maternal Wellness, we are choosing to celebrate International Women's Day by focusing on birth, breastfeeding, and baby-wearing traditions and images from around the world.

BIRTH HISTORY

World Birthing Traditions
The experience of giving birth is both universal and unique all at once. Although women have been doing it since the dawn of humanity, the process, politics and social norms around pregnancy and birth have evolved as medical practitioners and mothers become more experienced in birthing methods.

Historical and Traditional Birthing Positions 
In hospitals of the "developed" world, the vast majority of women give birth in a flat-on-the-back, semi-reclining, or semi-sitting position. Why do women use these passive positions and not more active positions like upright, kneeling, squatting, all-fours, side-lying, or asymmetric positions, which have historically been favored by many cultures?

MIDWIFE HISTORY

Midwives have been part of the human experience for as long as we know.”The ancient Jews called her the wise woman, just as she is known in France as the sage-femme, and in Germany, the weise frau and also Hebamme or mother’s adviser, helper, or friend. The English ‘midwife’ is derived from Middle English “mit wif, or with-woman”(J.H. Aveling). The Latin term cum-mater and the Spanish and Portuguese term comadre, have the same meaning: with woman.

Up until the mid-20th century, when obstetricians and hospitals became the primary location for delivery, these midwives provided most of the care for poor and rural pregnant women--black and white--throughout the South. Granny midwives were healers trained in their communities, a legacy of slavery but also central to health care during segregation. 

BREASTFEEDING IN AMERICA  

Proof that the “as-long-as-you-cover-up” mentality hasn’t been around for very long.

Black Wet Nurses And The Negative Connotations That Surrounds Them
When someone thinks of a black wet nurse, they don’t think of the ideal of a nurturing maternal figure. Rather, the modern black woman thinks of the idea of being a nurse or even of the notion of breastfeeding in general as evoking a visceral reaction akin to swallowing spoiled milk. Yet, the white ideal of breastfeeding evokes nostalgia, especially when it concerns black nursemaids—so much so that a “mammy” figure is used to sell syrup bottles in the twenty-first century. For the black woman, being subjected to the cruel, inhumane job of being a nursemaid still causes posttraumatic stress disorder so much so that it affects their quality of life.

“There were some older black women who wanted to disassociate themselves from the past, from slavery and the wet-nursing,” she said, explaining that often young slave women were impressed into giving their milk to white infants.










How and who do you celebrate on International Women's Day?

Monday, March 7, 2016

Our Hearts Matter... Even In Cyberspace

Rest and self-care are so important. It is not selfish. When you take time to replenish your spirit, it allows you to serve others from the overflow. You cannot serve from an empty vessel. - Eleanor Brownn

I live to share pregnancy, birth, and breastfeeding stories from amazing women. Ten years before I had a child, a college friend was having hers. As a fellow personal trainer and health coach, she uses her dramatic birth experience  and subsequent transformation to motivate her clients. This is why Tasha Edwards was one of the very first moms I reached out to when looking for contributors to this blog. Everyday, through her own words on social media, she inspires me to reach further, dig deeper, smile bigger, and breathe. *BREATHE* In February, during Heart Month, she challenged over 100 Facebook Friends to take control of their lifestyle and life choices. Read about it here: 

One Sunday in January, it hit me. It hit me like, pulled me out of bed from my Sunday after church nap and sat me straight up, hit me. 

"We are dying and we need to get real about it....real quick."

And what was "I" supposed to do about it? I'm "just" one woman, a personal trainer, a wellness coach, a fitness instructor, got a couple of kids, a couple of degrees and I've met Bob and Jillian from the Biggest Loser last summer, but I am no magician.

I am a woman who has heart disease on both sides of her family.  I am a woman who knows that heart disease (not breast cancer) is the NUMBER ONE killer of women. I am a woman who found the following blog post on her own blog:

"I have headaches. Serious headaches. Migraines. Tension. Cluster. I have them all. Sometimes separate, sometimes together. Sometimes they last minutes. Or hours. Or days. Or weeks. In the past, months. I’ve tried sleeping more, eating more, hydrating more, stressing less, essential oiling myself up, taking Tylenol and rubbing down in magnesium oil. I am now at the level of needing a narcotic for pain.

So, imagine my surprise when, after taking a narcotic last night, I found myself jumping up from my sleep in pain. For the past few days, I’ve had chest pain. Yesterday, it was in my back. The pain was so bad I couldn’t put my head down. I begin to have what I can only describe as “waves” of pain that made my body feel like I was doing a uncontrollable body roll on my left side. I have seizures too that usually start with headaches. And I am pre-menopausal so I have night sweats too. All of this is going on at once. I felt my husband put his hand on my shoulder and I thought, “This cannot be happening.” I could answer him but I had no control over my body. I asked him to turn on his phone and look up the symptoms for a heart attack.

Was I having a heart attack?" Read More... 

I am a woman who knows that women are way too busy saving the world to think about their health and well-being like they should.  I am a woman who knew other women who were not only powerful in sharing a message of health but were in need of looking in the mirror and saying, "I am worthy of saving."

And so began the #OurHeartsMatter movement.

The truth is I chose 100 women to join me because it's all Facebook would let me tag.  I went through my Facebook friends and randomly chose people, some on purpose, some by God's intervention.  I had NO IDEA what I was doing. I thought it would be a group where people would be glad to "sign up" and the only posts would be mine. 

And that was true for over half of the group, which grew to over 150 women.  For the ones that dove in, we began to uncover some things that were MUCH bigger than the latest way to cook chicken in a crock pot or new techniques for running on the treadmill.


These were the rules: 

I'm not big on a bunch of rules but I want this space to be safe and supportive. For that reason, I am asking that we all...

1) Do not post sales like stuff in here, no matter how great it is or how great you are. I am trusting you with each other because I care about you all. ❤️

2) Do not let this become a dumping ground at how you suck at exercising and you can't get motivated and spend 29 days talking about what you WISH you could do. I have surrounded you with the BEST! Ask questions, ask for recommendations but please, by all means, do not use this as your complaining space. We want to help you get better. When that happens, we all rise. ❤️

3) Do not post every detail of your day or only post here. This is your training ground, where you get amped out to go into the field. FLOOD YOUR TIMELINES with pictures of you taking care of yourself and making yourself a priority. We will back you up. Follow each other on social media. Like and comment on each other's posts. Work out and eat well with each other! ❤️

Everything you do here is worth it and valid! 

Thank you for being willing to be a part.



It got real in there. SUPER real.  While we certainly cheered each other on for hitting 20,000 steps in a day, awesome looking food and patted each other on the back for sharing heart disease facts with our family and friends, we listened to each other as we confessed the one thing that seems to drive women over the edge:

We DIDN"T have it all together and we were tired from trying to act like we did. We became undone in front of each other.  It is the group I wish I had when I wrote the above blog post, BEFORE I got to the point of being that stressed (which, along with overworking myself, caused my body to have such a reaction). It's not just the poor eating.  It's the stress that leads us to the poor eating.  It's not just the lack of exercise.  It's the depression that keeps us tied to the bed that is detrimental. It's the traditions from our family that we carry because we've never seen another way or we are ridiculed for wanting to do something different.  It's the habits we turn to because we have no other place to say, "I need help." Those are the things that are killing us. 


Women are twice as likely to die from a heart attack as men. We have to start asking why. 


What did I learn in February?  I learned there are foods that can protect my heart.  I learned that I am doing myself a favor by keeping up with my exercise routine.  I also learned that being my sister's keeper is better for my health than I could have ever known.  Our hearts do matter, individually and collectively. 


As a group fitness coach, personal trainer, holistic nutritionist, motivational speaker, influencer, mother, wife, and friend, Tasha Edwards is her own brand. Follow Hip Healthy Chick everywhere on social media! 


Who are your online accountability partners? 
Can you relate to this post-baby transformation?

Wednesday, March 2, 2016

15 Reasons To Call A Lactation Consultant (Today)

Breastfeeding is a mother's gift to herself, her baby, and the earth. ~Pamela K. Wiggins

A lactation consultant is a trained professional who can help women learn how to feed their babies from the breast. The title "Lactation Consultant" is not trademarked, and may be used by lactation professionals with varying degrees of experience and education. Each professional and supporter has a passion for breastfeeding, and a valuable place within the lactation community. 
 

An International Board Certified Lactation Consultant (IBCLC) has met the extensive clinical and educational qualifications for, and passed the exam given by, the International Board of Lactation Consultant Examiners (IBCLE). Because it is an international organization, the standards and scope of practice for IBCLCs are the same worldwideIBCLCs provide evidence-based lactation support for you and your baby and are especially important if you are having significant problems with milk supply, have a baby that is preterm or has medical challenges, if you've had a previous undesireable breastfeeding experience, or if you are feeding multiple children. Essentially, if you are having challenges initiating or sustaining breastfeeding for any reason, it is a great idea to call a lactation consultant. Thanks to the Affordable Care Act, certain lactation services and supplies are covered by insurance and tax-deductible. Find an IBCLC or other breastfeeding support in your area here, to address any of the concerns below: 
1. To help guide you on how often your baby should be nursing

2. To help your baby achieve a proper latch and teach you how to facilitate that latch... to avoid pain or blisters

3. To review positions and holds that are optimal for you and your baby

4. To help determine if you are producing enough milk (Spoiler Alert: You probably are)

5. To help you find ways to increase and maintain your milk supply 

6. To ask questions about prescribed supplementation or medication

7. To help navigate the world of pumping and storage

8. To help guide your food and beverage choices, as well as the frequency of your meals and snacks

9. To answer questions about nursing a baby with a cleft palate, lip tie, tongue tie, or other differences

10. To help identify the signs and symptoms of infections like thrush or mastitis

11. To provide techniques to overcome gastroesophogeal reflux (GERD).

12. To help address issues such as colic, gas, and general fussiness that may be related to nursing. 

13. To ask about feeds that are too short (less than 5 minutes), or too long (more than 50 minutes).

14. To address fussing, crying, or clicking sounds at the breast.

15. To get help with an infant who is avoiding the breast after a nursing pattern has been established. 

Also, if mom feels like something just isn’t right it probably isn’t and it’s time to call the lactation consultant.


Some of the less complex breastfeeding issues may be easily addressed by other lactation professionals including:

Certified Lactation Counselor (CLC) has taken a 45-hour class, and has passed the corresponding exam. Successful completion of the course signifies that the learner has met the required competencies and has a firm grounding in information and counseling skills required to provide basic support to breastfeeding mothers and children. Successful candidates have demonstrated competency in breastfeeding counseling, breastfeeding assessment and support skills. 

Certified Lactation or Breastfeeding Educator has taken a 20+ hour course in order to teach breastfeeding classes, usually in hospitals and clinics. Lactation Educators may work with pregnant women and their families in community perinatal health programs such WIC. They may be employed in a “Store” or “boutique” that rents or sells breastfeeding clothes and equipment.
 

WIC Peer Counselors receive a 20-hour training course that includes breastfeeding basics, counseling skills, and emphasis on the role of peer counselors in making referrals for circumstances outside the realm of normal breastfeeding. They serve as role models help new moms in their first days of breastfeeding and provide information about what moms can expect during the first days and weeks of baby’s life. They also provide follow-up counseling on the phone or in the clinic. There is evidence indicating that peer support is often more effective in helping a mother to initiate and sustain breastfeeding over time, than other lactation professionals. 

 
Breastfeeding Support Organizations like Reaching Our Sisters Everywhere (ROSE)  Breastfeeding USA, and La Leche League host mom-to-mom meetings, facilitated by an experienced mother who is trained in basic breastfeeding education, counseling, support, and referrals. 

OB/Gyns, Midwives, Pediatricians, and Nurses are highly skilled in their areas, but rely on the support of specially trained lactation professionals to resolve breastfeeding issues. Ask your provider for a referral if you have questions or concerns about your breastfeeding journey. 

Birth Doulas, Postpartum Doulas, Mothers, Sisters, Friends, Husbands, and other Moms can also offer great breastfeeding support in their own way, but read this first
Online Support Groups, Breastfeeding Hotlines, Local Coalitions, and Books can also be a source of breastfeeding support, or stress relief.

We celebrate everyone who makes breastfeeding accessible, manageable, and sustainable! 


How were you most supported along your breastfeeding journey? 
 
How have you helped to support another mom on hers?


Dr. Seuss On Breastfeeding And Other Things!

The more that you read, the more things you will know. The more that you learn, the more places you'll go. ~Dr. Seuss
 
Hop on Pop by Dr. Seuss was the first book that I read by myself. I read it to my father. This  experience has always been a vivid memory for me. I have no recollection of where my mother was at the time, but as a mother myself now, I'm certain that she was probably the one who patiently put in all of the work to get me to the point of reading independently, then shooed me away to my father, while she completed 1000 other tasks before bed... but I digress. 
 
 
    I have always been a fan of Dr. Seuss, and regularly give his incomparable Oh! The Places You'll Go! as gifts to friends and family members who are approaching a transition. Imagine how excited I was to find a mini version of the book, especially for the baby growing inside of me, while I was pregnant. I read Oh Baby! The Places You'll Go in utero! almost nightly to my unborn child. 


We continue to enjoy many silly Seuss classics today, but as mom who breastfed for three years, I have to say that there are some pretty hilarious Dr. Seuss parodies, inspired by breastfeeding. Here are a few of our favorites. 
 
Has This Author Been Revealed?
 
 



That friend of mine!
That friend of mine!
I do not like that friend of mine!

Do you like to nurse in public?
I do not like it, friend of mine. I do not like to nurse in public.
Would you like it here or there?
I would not like it here or there.

I would not like it anywhere.
I do not like to nurse in public.
I do not like it, friend of mine.

Would you like it at the mall?
Would you like it on a hill?
I do not like it at the mall.
I do not like it on a hill.

I do not like it here or there.
I do not like it anywhere.
I do not like to nurse in public.
I do not like it, friend of mine.

Would you do it on a plane?
Would you do it when in Spain?
Not on a plane.
Not when in Spain.

Not at the mall.
Not on a hill.
I would not do it here or there.
I would not do it anywhere.
I would not like to nurse in public.
I do not like it, friend of mine.

Would you? Could you?
With your friends?
Try it! Try it!
Do it now.
I would not, could not with my friends.
You can do it.
You will see.
You can do it by the sea.
I would not, could not by the sea.

Not with my friends. You let me be.
I do not like it when in Spain.
I do not like it on a plane.
I do not like it on a hill.
I do not like it at the mall.
I do not like it here or there.
I do not like it anywhere.
I do not like to nurse in public.
I do not like it, friend of mine.

A sling! A sling!
A sling! A sling!
Could you, would you, with a sling?
Not with a sling. Not by the sea.
Not with my friends. Now let me be!
I would not, could not, when in Spain.
I would not, could not on a plane.
I will not do it at the mall.
I will not do it on a hill.
I will not do it here or there.
I will not do it anywhere.
I do not like to nurse in public.
I do not like it, friend of mine.

Say!
On the Web?
Here on the Web!
Would you, could you, on the Web?
I would not, could not on the Web.
Would you, could you, at DQ?
I would not, could not at DQ?
Not on the Web. Not with a sling.
Not with my friends. Not by the sea.
I do not like it, don't you see?
Not on a hill. Not when in Spain.
Not at the mall. Not on a plane.
I will not do it here or there.
I will not do it anywhere.
You do not like to nurse in public?
I do not like it, friend of mine.

Could you, would you, with a goat?
I would not, could not, with a goat!
Would you, could you, on a boat?
I could not, would not, on a boat.
I will not, will not, with a goat.
I will not do it at DQ.
I will not do it in a sling.
Not on the Web! Not by the sea!
Not with my friends! You let me be!
I do not want to when in Spain.
I do not want to on a plane.
I will not do it on a hill.
I do not want to at the mall.
I do not like it here or there.
I do not like it ANYWHERE!
I do not want to nurse in public!
I do not like it, friend of mine.

You do not like it. So you say.
Try it! Try it!
And you may.
Try it and you may, I say.
Friend of mine!
If you will let me be, I will try it.
You will see.

Say!
I can nurse in public!
I can! I can do it, friend of mine.
And I would do it in a boat.
And I would do it with a goat. 
I would do it at DQ.
And on The Web. And in a sling. 

And with my friends. And by the sea

It is so easy, so easy, you see.
So I will do it when in Spain.
And I will do it on a plane

I will do it on a hill

I will do it at the mall

And I will do it here and there.

Say! I can do it ANYWHERE!
I do so like to nurse in public.
Thank you!
Thank you!
Friend of mine.




Finally, check out this awesomely relatable book, perfect for any mom who breastfed for even a day. 
The Places You'll Feed 
There's milk in your boobs.
Your babe needs to eat.
It's time to get topless,
and offer a teat!
 
~Lauren Hirshfield Belden



What was your first or favorite Dr. Seuss Book?
Is there a fun parenting parody that we missed?

Monday, February 29, 2016

A Heart For Success: Learning From My Child With Developmental Delays

With a child's heart
Go face the worries of the day
With a child's heart
Turn each problem into play
No need to worry no need to fear
Just being alive makes it all so very clear... With A Child's Heart, Stevie Wonder

Sometimes, it takes a child to demonstrate what real strength, courage, determination, and success look like. Please enjoy this perspective from Ashley Martin about her son Rex, who was born with multiple heart defects and other developmental delays:
“How old were you when you took your first steps?,” he asked me.
Pausing, I said, “I don't know.”
“Exactly,” he said, “The fact is that you learned to walk. No one cares how old you were.”

As the mother of a child with developmental delays, this conversation with my pastor has popped in my head through every bump in the road and with every achieved milestone. Theodore Roosevelt said, “Comparison is the thief of joy,” and it has been stealing the joy of parents for years. We fight it, but eventually, it finds each one of us. It can show up in the child at library story hour who is half your child's age, double his size, and running circles around him. Hypothetically speaking, of course.


Crossing The Finish Line In The Kerrington's Heart 5K Fundraiser
2014
My first child hit every milestone on time and sometimes early. People were always commenting on how advanced her speech was for her age and how smart she was... and is. My son hit none of his milestones and took months to master things my daughter just did naturally. With many hours, weeks, and months of hard work, children who have delays will eventually achieve the same goals their peers likely achieved much sooner, but the celebration is much sweeter. If you are the parent of a child who some might describe as “behind,” hang in there. Keep working with her and know she isn't “behind” anyone because she isn't competing with anyone, but herself. Children arrive in their own time and they can't be rushed.

 



Benchmarks definitely have their place, but when they become the measuring stick for a child's (or parent's) “success,” they lose their value. Success is defined as: the correct or desired result of an attempt. Do you notice something missing from that definition? “...by a certain time or age.” WE put these specific parameters on our children and redefine “success.” I can list the many successes, the added pressure from well-meaning grandparents, other parents, and especially from ourselves is unnecessary and, in many ways, can be unhealthy. 

I should probably clarify that. As a parent, you should be aware of a typical development timeline so you know when your child may need therapies to help them get on track. Just as it isn't good to be overly comparative, it is equally bad to be in denial of possible challenges. 

I am so grateful for the doctors and therapists who gently clued me in to my son's need for therapy. I confess that I was so overwhelmed with all he already had going on that I was oblivious. He had his first heart surgery at 13 days old and just seemed to have uphill battles from the beginning. At four months old, he was diagnosed with hip dysplasia and began aggressive treatment that involved a harness and later a brace that was to be worn for an unknown period of time (ended up being 15 months). So, when he wasn't rolling over by 6 months old, I blamed the brace. I told myself, “Of course he can't roll over; his hips are restricted 12—24 hours a day!” It turned out that he also has low muscle tone which meant rolling was going to be a challenge, with or without a hip brace. So, he began weekly physical therapy sessions. His physical therapist noticed that he only used his right hand...so, he began occupational therapy. Some months later, that same physical therapist (who became like family) mentioned my son's speech and how he might benefit from therapy in that area. 


Rex Sleeping In His Hip Brace

For 2+ years, he received a combined total of 10 hours of therapies a month. My life revolved around his therapy schedule and there were times when I just didn't think I could do it any more. Now, as I see my son run, climb, turn door knobs, and speak in full sentences, it was all worth it. He attends preschool 4 half-days a week where he receives weekly therapies in all areas and he still gets speech at home. He loves school and everyone there loves him! He can tell you all of his teachers' names, and is quick to tell you who is best friend is, too. He even went "peepee" in the potty for the first time EVER at school. Oh, and the way his big sister has grown into a “mini therapist” has been amazing to watch. She used to put his favorite toy on top of our ottoman to “make him work for it.” Next to me, she is his biggest advocate and cheerleader and he, of course, thinks she hung the moon.


Working on Rolling Over
I wish I could tell the mom of that non-walking 2-year old to enjoy him no matter what stage of development he is in. Don't dwell on the delays or setbacks, but focus on the successes. Now, that we are potty training, I told a friend, “He peed in the potty 7 times Saturday!” I am choosing not to keep track of all of the accidents because focusing on the negative never helped anyone and certainly never ended in SUCCESS.


Running Across The Same 5k Finish Line, One Year Later
2015

Ashley Martin has been a full-time stay-at-home mom and part-time blogger since 2007. She is active in her community and in her church where she hosts Bible study in her home and helps lead worship. She proudly calls herself a Heart Mom and is an advocate for families who have a child born with a Congenital Heart Defect (CHD). Ashley resides in Nicholasville, Kentucky, with her husband and two children.
Do you have a pregnancy, birth, breastfeeding, or motherhood story that you would like to share with other Blossom Moms? Please contact us! 

Congenital Heart Defect Week: The Heart of a Warrior!


Congenital Heart Defect Awareness Week, held February 7–14, is an annual observance to promote awareness and education about congenital heart defects (CHDs). They affect nearly 1 in 100 births every year in the United States and are the most common (and least funded) type of birth defect. 

Some heart defects can be diagnosed prenatally using ultrasound, some might be identified during newborn screening using pulse oximetry, and others might be discovered by clinical exam or when the person becomes symptomatic. An estimated 2 million children and adults in the United States are living with a CHD today. 
 
Be inspired by the amazing Heart Mom Ashley Hunt Martin, her determined Warrior Rex, and their family's CHD Week 2016. 


February 7th, How I found out: In early April, 2012, at 36+ weeks, I had stopped gaining weight and my belly had stopped growing. An ultrasound revealed my amniotic fluid was low, but, no matter how much I flipped & flopped on the table, they could not get a good, full picture of Rex's heart. After a week of bedrest (to hopefully increase my amniotic fluid), I went in for another ultrasound that showed there was a problem with Rex's heart. We were sent across town to a pediatric cardiologist who was able to tell us more about his heart, but admitted that we wouldn't have a complete picture until Rex was born. I was admitted that night and Rex was induced and delivered 2.5 weeks early the next morning, April 11th.

Ashley, Lyla, and Rex on the way!
 
February 8th, First Photo: I had a normal delivery. The NICU nurses were present just in case, but Rex was not rushed away. At this point, we still only knew what the pediatric cardiologist had told us the day before--the defect she had seen was minor and should correct itself at birth. A couple of hours later, Rex would have his first echo showing just how many defects his little heart had. Not counting the one that DID correct itself at birth, he had 3. He was sent to the NICU for monitoring, but Dr. Cottrill didn't think immediate surgery would be necessary. It wasn't until the blood pressure in Rex's legs plummeted on his 8th day that he was transferred to UK and his first surgery was scheduled.

Ashley and Rex


Kerrington's Heart Inc. is a 501(c)(3) organization dedicated to the education, support, and encouragement of children with heart disease, their families and caregivers.
 
February 9, Emotions/Fears: Rex's surgery was April 24, 2012, but our scariest, most emotional day came two days later. There is risk of brain damage, kidney function loss, paralysis, etc the longer the aorta is clamped. Those risks increase and the "safe window" of how long the aorta should remain clamped decreases with each clamping. Rex's aorta had to be clamped THREE times during his surgery. I blogged about that day here:
 

February 10th, Hospital Stay: Rex spent his first week of life at St. Joseph East before being transferred to UK's NICU. He was moved to the P(Pediatric)ICU after a couple of days, though, because he needed a central line and was being prepped for surgery. We had a private room and some amazing nurses! In fact, I have nothing bad to say about ANY of our nurses. They were such blessings! The bottom left picture represents a huge triumph--it was the first time I was able to nurse Rex. My sister-in-law and our favorite nurse, Korinne, fought for me when I was too emotional and stressed to fight for myself. His surgery was successful and he was healing nicely, but Rex struggled to gain weight (something he would battle the first year of his life) which kept us in the hospital much longer than we expected. Lyla practically lived with Seth's sister and family during that time with other family members and friends helping to get her to and from ballet and even chaperoning a field trip. It truly does take a village! Seth and I lived with our friends, Shane and Suzanne so we could be closer to the hospital and I had breast milk in freezers all over town. Finally, as we were on our way to church one Sunday, our nurse called to tell us that Rex was going home that day! We were shocked because we had been told that patients are rarely released on a Sunday. Those were the longest 3.5 weeks of our lives, but now, they are just a tiny blip on the radar.



 Please Donate to

February 11th, New Normal: When Rex sees the cardiologist every 6 months, he could have any combination of tests done. They always check his blood pressure which (these days) definitely doesn't go as smoothly as it did in the picture on the left. *A little sidenote: The artery leading to Rex's arm was severed and used to widen his aorta so he will never have a blood pressure reading in his left arm.* He sometimes has an echo (ultrasound of his heart, pictured on the right) and other times he has a chest x-ray. They "attempt" an EKG every time, but it's a toss-up as to whether or not he will cooperate and an EKG of a screaming child doesn't really give a very accurate picture. I am thankful that our day-to-day lives really aren't all that different from non-CHD families. Rex is only on one heart medication which feels like nothing compared to what others are going through.



Watch this video of  Rex's Miracle

February 12th, Honor Your Warrior: Rex has no idea what an inspiration he is or the impact his little life has already had on so many. This is one of my favorite pictures of him. (Taken about a year ago by my friend, Michelle Graham Shiflet.) It captures him perfectly. He has his "terrible threes" moments, but, in general, this is the face you see when you see Rex. He loves Daniel Tiger, all things music, DRUMS, to laugh, to scare people, and to help. He is wearing his Beads of Courage around this neck. Each bead represents a clinic appointment, test, or procedure he has endured. As you can see, this one is full--he has started his second one already. I am so proud this CHD Warrior calls me "Mom." He is truly a living testimony.



Wearing RED for REX! *Lyla will tell you she is wearing it for Valentine's Day. ;-)



February 13th, The Scar: This was the first bath I was able to give Rex. Rex's scar isn't where you would expect a CHD kiddo to have one. The defect that was repaired was on his aorta which is on the outside of his heart so they were able to do a thoracic surgery. They went in under his arm, between his ribs, and moved his lung to get to the aorta. Imagine that on a little 5 lb. baby with a heart the size of a strawberry. God is good.



February 14th, CHD Fact: This year approximately 4,000 babies will not live to see their first birthday because of Congenital Heart Defects.


Rex's new book, "Jeremiah, the CHD Aware Bear, and Friends" arrived! "He [Jeremiah] was a Warrior, a mighty fighter indeed." Purchase your copy Today! 



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